Hypothalamic-Pituitary Brain Tumors – Hypothalamic-Pituitary

The Hypothalamic-Pituitary Brain Tumors Patient Registry is an online registry for people with rare hypothalamic-pituitary brain tumors. It is sponsored by the Raymond A. Wood Foundation and hosted by the National Organization for Rare Disorders (NORD®) on their IAMRARE® platform. This registry will collect information from participants (or their authorized representatives) who are affected by rare hypothalamic-pituitary brain tumors. Find out more >

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?

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For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

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Join the Registry

Please create an account to provide consent to participate in the study.

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